Appendix 1

Template for identifying patients with a learning disability in primary care: practice-based registers.

The definition of learning disability used is: ‘A person with learning disabilities has a significantly reduced ability to understand new or complex information and a reduced capacity to cope independently. This condition is present from childhood and has a lasting effect on development.’9
Read codes that give a definite indication of learning disability
E3%Mental retardationEu7%[X] Mental retardation
6664Mental handicap problemPJ0%Down's syndrome — trisomy 21
PJyy2Fragile X chromosomeEu842[X] Rett's syndrome
PKy93Prader-Willi syndromePKy80Noonan's syndrome
9HB%Learning disabilities administration status
Read codes that give a possible indication of learning disability AND need to be verified by the patients' GP
Eu8lz[X] Developmental disorder of scholastic skills unspecified13Z4ELearning difficulties
PJ7%Klinefelter's syndromeF23%Congenital cerebral palsy
F1370Athetoid cerebral palsyEu845[X] Asperger's syndrome
PK5Tuberous sclerosisPK61Sturge-Weber syndrome
B927Neurofibromatosis — Von Recklinghausen's diseaseBBe1%[M] Neurofibromatosis NOS
E140%Infantile autismEu84%[X] Pervasive developmental disorders
1J9Suspected autismC301Phenylketonuria
PKy0%Multiple system congenital anomaliesE2F2Other specific learning difficulty
ZV400[V] Problems with learning13Z3Low IQ
8HHPReferral to learning disability team
  • Group home: patients who live in a group home specifically for people with a learning disability, identified by searching by group home address.

    GP identification: In the pilot study, GPs identified some patients who were not found using the above Read code searches OR group home address searches.

    Please include any additional patients with a learning disability that may be known to the practice.

    0 = zero. % = include all sub-codes.

  • © The University of Leeds 2008. This work can be used free of charge and for any purpose subject to: (1) Acknowledgement of the authors of this article.(2) To the full extent allowed under English law, neither the University nor the authors accept any liability arising from your use of the work.