1. Advice/help prior to contacting services | 1. Seeking advice |
| 2. Receiving advice |
| 3. Perceived triggers for seeking advice |
| 4. Barriers to advice |
2. Awareness of cognitive condition | 1. Self-monitoring (relating to the individual with dementia) |
| 2. Change or transition (relating to the individual with dementia) |
| 3. Diagnosis (relating to the individual with dementia) |
| 4. Awareness drift |
| 5. Views of others |
3. Examples of memory problems/cognitive impairment | 1. Personal |
| 2. Previous |
| 3. Others (media/societal attitude) |
4. Response to memory problems/cognitive impairment | 1. Normalising |
| 2. Self-acceptance/resignation |
| 3. Finding a life philosophy/coping style |
| 4. Coping strategy |
| 5. Withdrawal |
| 6. Not coping |
5. Telling/sharing with/ talking to others (or lack thereof) | 1. Who |
| 2. Why |
| 3. Perceived impact |
6. Emotional responses to the condition/ process/diagnosis | |
7. Service pathway (including assessment, disclosure, treatment and follow-up) | 1. Waiting (subjective experience) |
| 2. Lack of clarity |
| 3. Time frame (measurable) |
| 4. Testing or scoring |
| 5. Scans |
| 6. Medical examination (including bloods) |
| 7. Referral process: by and to whom? |
| 8. Questions asked |
| 9. Information received (and type) |
| 10. Experience of process (include description of and experience of environment) |
| 11. Satisfaction/dissatisfaction with service |
| 12. Satisfaction/dissatisfaction with individuals |
| 13. Initial expectations |
| 14. What has and has not helped (specific examples) |
| 15. What could have helped (specific examples) |
8. Support (structural, practical, emotional, services) | 1. Extended family |
| 2. Spouse |
| 3. Friends |
| 4. Church/religious institution |
| 5. Day centre/club |
| 6. Other support (service support) |
| 7. Absence of support and unmet needs |
9. Other support and information needs | |
10. Future | 1. Expectations |
| 2. Hopes |
| 3. Plans |
| 4. Fears |
11. Anti-dementia drugs | 1. Effect (including side effects) (perceived) |
| 2. Feelings |
| 3. Expectations |
| 4. Management |