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Editorials

Overcoming barriers to autistic health care: towards autism-friendly practices

Mona Johnson, Mary Doherty and Sebastian CK Shaw
British Journal of General Practice 2022; 72 (719): 255-256. DOI: https://doi.org/10.3399/bjgp22X719513
Mona Johnson
NHS Digital, Leeds, UK.
Roles: Deputy Clinical Director for Patient Safety
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Mary Doherty
Our Lady’s Hospital, Navan, Ireland.
Roles: Consultant Anaesthetist
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Sebastian CK Shaw
Department of Medical Education, Brighton and Sussex Medical School, Brighton, UK.
Roles: Lecturer in Medical Education (Research Methods)
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  • Overcoming barriers to autistic health care in primary care
    Henk de Vries
    Published on: 29 May 2022
  • Published on: (29 May 2022)
    Page navigation anchor for Overcoming barriers to autistic health care in primary care
    Overcoming barriers to autistic health care in primary care
    • Henk de Vries, GP, Marisco Medical Practice

    This article struck to my heart, as I believe it will do to many other GPs. A diagnosis of autism in general practice is not usually very difficult and as parents as well as adults become more aware, the diagnosis of autism can and will only increase. This will make it impossible for any secondary care service to meet that demand and nor is this desirable. A diagnosis of autism is a spectrum, not only in its width but also in its length: individual differ in their severity.

    The expectations raised what secondary care services can deliver often is not realistic and in my view can be detrimental if it only stigmatise a neuro-developmental disorder. Most advice, perhaps with some educational support should be possible to deliver in a primary care consultation.

    Medical treatment requires to date a shared care approach and I would postulate, perhaps somewhat controversial whether some of those decisions could be made in primary care only. The waiting times to get seen by a specialist service are often that long that children during that time have become adults, leaving a long treatment gap at a stage where treatment is more beneficial.

    This proposal comes with an important caveat: all trials of any ADHD medication have all been done in the context of support mechanisms and the trialists have confirmed some years ago, that in isolation they may not work that well. Local experience of a learning disabled psychiatrist is that side effects are relative minim...

    Show More

    This article struck to my heart, as I believe it will do to many other GPs. A diagnosis of autism in general practice is not usually very difficult and as parents as well as adults become more aware, the diagnosis of autism can and will only increase. This will make it impossible for any secondary care service to meet that demand and nor is this desirable. A diagnosis of autism is a spectrum, not only in its width but also in its length: individual differ in their severity.

    The expectations raised what secondary care services can deliver often is not realistic and in my view can be detrimental if it only stigmatise a neuro-developmental disorder. Most advice, perhaps with some educational support should be possible to deliver in a primary care consultation.

    Medical treatment requires to date a shared care approach and I would postulate, perhaps somewhat controversial whether some of those decisions could be made in primary care only. The waiting times to get seen by a specialist service are often that long that children during that time have become adults, leaving a long treatment gap at a stage where treatment is more beneficial.

    This proposal comes with an important caveat: all trials of any ADHD medication have all been done in the context of support mechanisms and the trialists have confirmed some years ago, that in isolation they may not work that well. Local experience of a learning disabled psychiatrist is that side effects are relative minimal and it either works fairly well, fairly soon or it does not at all.

    This is a discussion which should take place.

    Show Less
    Competing Interests: None declared.
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British Journal of General Practice: 72 (719)
British Journal of General Practice
Vol. 72, Issue 719
June 2022
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Overcoming barriers to autistic health care: towards autism-friendly practices
Mona Johnson, Mary Doherty, Sebastian CK Shaw
British Journal of General Practice 2022; 72 (719): 255-256. DOI: 10.3399/bjgp22X719513

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Overcoming barriers to autistic health care: towards autism-friendly practices
Mona Johnson, Mary Doherty, Sebastian CK Shaw
British Journal of General Practice 2022; 72 (719): 255-256. DOI: 10.3399/bjgp22X719513
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  • Article
    • AUTISTIC HEALTH CARE — BEYOND DIAGNOSIS
    • REMOTE CONSULTING — TELEPHONE ASSESSMENT CHALLENGES
    • BARRIERS TO PRIMARY HEALTH CARE — PREDICTABILITY, COMMUNICATION, AND SENSORY PROCESSING
    • AUTISM-FRIENDLY PRACTISES AND PRACTICES
    • CONCLUSION
    • Notes
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More in this TOC Section

  • Long COVID in children and young people: uncertainty and contradictions
  • Childhood eczema: paths to optimisation of management
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Print ISSN: 0960-1643
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