Parents/carers may not have a lot of time; eczema treatment can be time consuming and may be challenging to fit into their daily routine | SR, EO | To create an intervention that is engaging and easy to navigate, in which parents/carers can quickly find the relevant information |
Make most intervention content optional so it can be accessed when/if it is needed Add filtering questions to help signpost parents/carers to relevant modules Use a modular layout so that parents/carers can quickly identify and select relevant topics Ensure information is concise, presented in short chunks Provide information in a range of formats to improve accessibility (for example, audio-visual features, interactive features)
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Parents/carers may feel distressed by the impact eczema has on their child. They may be struggling to manage their child’s eczema, may be sleep deprived, or may worry about the long-term impact of eczema on their child. They may also feel distressed by their child’s reaction to treatments (for example, if the child finds it uncomfortable or painful), which may lead them to avoid, delay, stop, or use treatments less often than needed. | PPI, SR, I | To reduce parents’/carers’ feelings of helplessness, frustration, self-blame, and guilt about their child’s eczema |
Validate and normalise parents’/carers’ feelings around eczema and its management Emphasise things that parents/carers can do to help manage their child’s eczema, including tips and quotes from other parents/carers Acknowledge that there are precipitating factors that are out of their control and identify what parents/carers can do to manage flare-ups Avoid messages that may be viewed as blaming parents/carers for eczema flare-ups Provide emotional management techniques that can help parents/carers manage difficult emotions
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Young children may resist treatments because they dislike them and may not understand why they need them. As children get older, they increasingly encounter situations where they need to take more responsibility for managing their eczema (for example, starting school, socialising outside the home). They may also want to start to self-manage, so will need to develop their own knowledge and skills for managing eczema. | PPI, SR, I | To facilitate co-management of eczema between parents/carers and their child to support their child’s treatment adherence, and support their child’s transition towards self-management |
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Children may find eczema painful, itchy, unpleasant, or distressing. They may not understand what eczema is, or why they need to do the things that help them manage their eczema. They may find topical treatments painful, unpleasant, frustrating, or boring, which may lead them to avoid using treatments or use them less than is needed. | PPI, SR, I | To reduce children’s feelings of distress, anxiety, hopelessness, and frustration around eczema and its treatment |
Help parents/carers to understand children’s feelings Provide age-appropriate tools/activities to help children manage difficult emotions related to eczema and its treatment to use on their own or with parents/carers Provide age-appropriate explanations about eczema and its treatments to help children make sense of eczema and its treatment
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