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Primary care contacts, continuity, identification of palliative care needs, and hospital use: a population-based cohort study in people dying with dementia

Javiera Leniz, Martin Gulliford, Irene J Higginson, Sabrina Bajwah, Deokhee Yi, Wei Gao and Katherine E Sleeman
British Journal of General Practice 2022; 72 (722): e684-e692. DOI: https://doi.org/10.3399/BJGP.2021.0715
Javiera Leniz
NIHR clinician scientist and honorary consultant in palliative medicine, Cicely Saunders Institute for Palliative Care, Policy & Rehabilitation, Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care, King’s College London, London.
Roles: PhD, fellow
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Martin Gulliford
Department of Population Health Sciences, Faculty of Life Science & Medicine, King’s College London, London.
Roles: Professor of public health
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Irene J Higginson
NIHR clinician scientist and honorary consultant in palliative medicine, Cicely Saunders Institute for Palliative Care, Policy & Rehabilitation, Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care, King’s College London, London.
Roles: Executive dean and vice dean for research
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Sabrina Bajwah
NIHR clinician scientist and honorary consultant in palliative medicine, Cicely Saunders Institute for Palliative Care, Policy & Rehabilitation, Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care, King’s College London, London.
Roles: Clinical senior lecturer and honorary consultant in palliative care
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Deokhee Yi
NIHR clinician scientist and honorary consultant in palliative medicine, Cicely Saunders Institute for Palliative Care, Policy & Rehabilitation, Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care, King’s College London, London.
Roles: Health economist
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Wei Gao
NIHR clinician scientist and honorary consultant in palliative medicine, Cicely Saunders Institute for Palliative Care, Policy & Rehabilitation, Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care, King’s College London, London.
Roles: Professor of statistics and epidemiology
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Katherine E Sleeman
NIHR clinician scientist and honorary consultant in palliative medicine, Cicely Saunders Institute for Palliative Care, Policy & Rehabilitation, Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care, King’s College London, London.
Roles: Laing Galazka chair in palliative care
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  • Primary care contacts, continuity, identification of palliative care needs, and hospital use: a population-based cohort study in people dying with dementia
    Sara Mohammadi
    Published on: 24 March 2023
  • Published on: (24 March 2023)
    Page navigation anchor for Primary care contacts, continuity, identification of palliative care needs, and hospital use: a population-based cohort study in people dying with dementia
    Primary care contacts, continuity, identification of palliative care needs, and hospital use: a population-based cohort study in people dying with dementia
    • Sara Mohammadi, MD-MPH student, School of Public Health, Tehran University of Medical Sciences, Tehran, Iran, School of Public Health, Tehran University of Medical Sciences, Tehran, Iran

    This article aims to illustrate the importance of continuity of care, and its association with unplanned hospital admissions in people dying from dementia.1 As we have touched upon a few key aspects of this issue regarding this challenging group of care recipients, we have discussed possible solutions and the situation in our country.

    A quality marker of good end-of-life care is that patients can die and be cared for in their preferred setting throughout their final days.2-3 According to the depicted results, it could be inferred, “No home” death was significantly higher in the group with multiple unplanned hospital admissions in the last 90 days, suggesting poor end-of-life quality. Furthermore, participants, who live in rural areas, are admitted more frequently to hospitals, In line with current literature.4-5.

    Higher healthcare needs or inadequate service integration may be the cause of patients' frequent hospital admissions and higher GP visits. In either case, strategies to improve continuity of care, particularly in residential settings, could lead to less frequent hospital transitions and higher quality of life. Primary care services delivered in multidisciplinary teams are likely to contribute to reducing unnecessary hospital admission at the end of life by facilitating timely access to patient-centered care.

    Lastly, the Integration of home-based care services into the healthcare system may en...

    Show More

    This article aims to illustrate the importance of continuity of care, and its association with unplanned hospital admissions in people dying from dementia.1 As we have touched upon a few key aspects of this issue regarding this challenging group of care recipients, we have discussed possible solutions and the situation in our country.

    A quality marker of good end-of-life care is that patients can die and be cared for in their preferred setting throughout their final days.2-3 According to the depicted results, it could be inferred, “No home” death was significantly higher in the group with multiple unplanned hospital admissions in the last 90 days, suggesting poor end-of-life quality. Furthermore, participants, who live in rural areas, are admitted more frequently to hospitals, In line with current literature.4-5.

    Higher healthcare needs or inadequate service integration may be the cause of patients' frequent hospital admissions and higher GP visits. In either case, strategies to improve continuity of care, particularly in residential settings, could lead to less frequent hospital transitions and higher quality of life. Primary care services delivered in multidisciplinary teams are likely to contribute to reducing unnecessary hospital admission at the end of life by facilitating timely access to patient-centered care.

    Lastly, the Integration of home-based care services into the healthcare system may enhance the quality of end-of-life care for this population due to the vulnerable state of dementia patients. Programs to give and instruct accessible home-based care services might be also quite beneficial in our country, Iran, especially for senior citizens who live in remote rural areas or those who have significant cognitive deterioration. There are however potential barriers to home care services, including education barriers, implementation barriers such as distrust among the community towards non-physician experts, and policy barriers such as prioritizing hospital services over community services and lack of insurance coverage.

    References

    1. Leniz J, Gulliford M, Higginson IJ, Bajwah S, Yi D, Gao W, Sleeman KE. Primary care contacts, continuity, identification of palliative care needs, and hospital use: a population-based cohort study in people dying with dementia. Br J Gen Pract 2022; 72(722): e684–92. doi: 10.3399/BJGP.2021.0715.
    2. Fereidouni A, Salesi M, Rassouli M et al. Preferred place of death and end-of-life care for adult cancer patients in Iran: A cross-sectional study. Frontiers in Oncology. 2022;12.
    3. Sheridan R, Roman E, Smith AG et al. Preferred and actual place of death in haematological malignancies: a report from the UK haematological malignancy research network. BMJ Supportive & Palliative Care. 2021;11(1):7-16.
    4. Biem HJ, Hadjistavropoulos H, Morgan D, Biem HB, Pong RW. Breaks in continuity of care and the rural senior transferred for medical care under regionalisation. International Journal of Integrated Care 2003;3.
    5. Van Servellen G, Fongwa M, Mockus D’Errico E. Continuity of care and quality care outcomes for people experiencing chronic conditions: A literature review. Nursing & Health Sciences 2006; 8(3):185-95.

    Show Less
    Competing Interests: None declared.
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British Journal of General Practice: 72 (722)
British Journal of General Practice
Vol. 72, Issue 722
September 2022
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Primary care contacts, continuity, identification of palliative care needs, and hospital use: a population-based cohort study in people dying with dementia
Javiera Leniz, Martin Gulliford, Irene J Higginson, Sabrina Bajwah, Deokhee Yi, Wei Gao, Katherine E Sleeman
British Journal of General Practice 2022; 72 (722): e684-e692. DOI: 10.3399/BJGP.2021.0715

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Primary care contacts, continuity, identification of palliative care needs, and hospital use: a population-based cohort study in people dying with dementia
Javiera Leniz, Martin Gulliford, Irene J Higginson, Sabrina Bajwah, Deokhee Yi, Wei Gao, Katherine E Sleeman
British Journal of General Practice 2022; 72 (722): e684-e692. DOI: 10.3399/BJGP.2021.0715
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Keywords

  • dementia
  • end of life
  • family practice
  • palliative care
  • primary health care
  • hospitalisation

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