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Research

Advance care planning engagement in patients with chronic, life-limiting illness: baseline findings from a cluster-randomised controlled trial in primary care

Julie Stevens, Rose Miranda, Luc Deliens, Peter Pype, Aline De Vleminck and Koen Pardon
British Journal of General Practice 2023; 73 (730): e384-e391. DOI: https://doi.org/10.3399/BJGP.2022.0100
Julie Stevens
End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB) and Universiteit Gent; Department of Family Medicine and Chronic Care, VUB, Brussels; Department of Public Health and Primary Care, Universiteit Gent, Ghent.
MSc
Roles: Junior researcher
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Rose Miranda
End-of-Life Care Research Group, VUB and Universiteit Gent; Department of Family Medicine and Chronic Care, VUB, Brussels.
PhD
Roles: Postdoctoral researcher
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Luc Deliens
End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB) and Universiteit Gent; Department of Family Medicine and Chronic Care, VUB, Brussels; Department of Public Health and Primary Care, Universiteit Gent, Ghent.
PhD
Roles: Professor of palliative care research
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Peter Pype
End-of-Life Care Research Group, VUB, and Universiteit Gent; Department of Public Health and Primary Care, Universiteit Gent, Ghent.
MD, PhD
Roles: Professor of primary care and palliative care
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Aline De Vleminck
End-of-Life Care Research Group, VUB and Universiteit Gent; Department of Family Medicine and Chronic Care, VUB, Brussels.
PhD
Roles: Assistant professor
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Koen Pardon
End-of-Life Care Research Group, VUB and Universiteit Gent; Department of Family Medicine and Chronic Care, VUB, Brussels.
PhD
Roles: Professor of palliative care in people with cancer
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  • Education for advanced care planning respecting cultural and social sensitivity
    Ryuichi Ohta
    Published on: 24 May 2023
  • Published on: (24 May 2023)
    Page navigation anchor for Education for advanced care planning respecting cultural and social sensitivity
    Education for advanced care planning respecting cultural and social sensitivity
    • Ryuichi Ohta, Family physician, Unnan City Hospital, Japan

    I have read, with great respect, the research titled “Advance care planning engagement in patients with chronic, life-limiting illness: baseline findings from a cluster-randomised controlled trial in primary care.”1 This research clarified what GPs should emphasize for effective improvement of patients engagement in advanced care planning (ACP). The critical factor is discussing with patients about their future health, such as controlling their symptoms in palliative status. As GPs need active listening skills to facilitate ACP, communication training specific to ACP should be established and investigated regarding the effectiveness.

    Furthermore, ACP education should be nuanced, respecting cultural and social backgrounds. In Asian contexts, ACP among older patients may depend on physicians’ perspectives and not be motivated to decide where to live in terminal conditions.2 There may be the social norm that all of the physicians’ decisions are reliable because of already established paternalism among older generations. Another factor affecting ACP among older people is caregiver issues. In Japan, caregivers’ burden is critical because fewer people are dedicated to caregiving, and more people work outside their houses, causing the lack of a caregiving workforce.3 The practical education of ACP to general practitioners and patients should include more about social and cultural issues in addition to communic...

    Show More

    I have read, with great respect, the research titled “Advance care planning engagement in patients with chronic, life-limiting illness: baseline findings from a cluster-randomised controlled trial in primary care.”1 This research clarified what GPs should emphasize for effective improvement of patients engagement in advanced care planning (ACP). The critical factor is discussing with patients about their future health, such as controlling their symptoms in palliative status. As GPs need active listening skills to facilitate ACP, communication training specific to ACP should be established and investigated regarding the effectiveness.

    Furthermore, ACP education should be nuanced, respecting cultural and social backgrounds. In Asian contexts, ACP among older patients may depend on physicians’ perspectives and not be motivated to decide where to live in terminal conditions.2 There may be the social norm that all of the physicians’ decisions are reliable because of already established paternalism among older generations. Another factor affecting ACP among older people is caregiver issues. In Japan, caregivers’ burden is critical because fewer people are dedicated to caregiving, and more people work outside their houses, causing the lack of a caregiving workforce.3 The practical education of ACP to general practitioners and patients should include more about social and cultural issues in addition to communication methods. Further investigation can include how such issues affect ACP decision-making and the educational effects.

    References

    1. Stevens J, Miranda R, Deliens L, Pype P, De Vleminck A, Pardon K. Advance care planning engagement in patients with chronic, life-limiting illness: baseline findings from a cluster-randomised controlled trial in primary care. Br J Gen Pract 2023;73(730): e384-e391. DOI: 10.3399/BJGP.2022.0100.
    2. Ohta R, Ryu Y, Kitayuguchi J, Gomi T, Katsube T. Challenges and solutions in the continuity of home care for rural older people: A thematic analysis. Home Health Care Serv Q 2020;39(2):126-139. DOI: 10.1080/01621424.2020.1739185.
    3. Imaiso J, Sasaki U. Influential factors of long-term care in a Japanese rural community examined through interviews of family caregivers. J Community Health Nurs 2010;27(1):23-31. DOI: 10.1080/07370010903466148.

    Show Less
    Competing Interests: None declared.
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British Journal of General Practice: 73 (730)
British Journal of General Practice
Vol. 73, Issue 730
May 2023
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Advance care planning engagement in patients with chronic, life-limiting illness: baseline findings from a cluster-randomised controlled trial in primary care
Julie Stevens, Rose Miranda, Luc Deliens, Peter Pype, Aline De Vleminck, Koen Pardon
British Journal of General Practice 2023; 73 (730): e384-e391. DOI: 10.3399/BJGP.2022.0100

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Advance care planning engagement in patients with chronic, life-limiting illness: baseline findings from a cluster-randomised controlled trial in primary care
Julie Stevens, Rose Miranda, Luc Deliens, Peter Pype, Aline De Vleminck, Koen Pardon
British Journal of General Practice 2023; 73 (730): e384-e391. DOI: 10.3399/BJGP.2022.0100
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Keywords

  • advance care planning
  • baseline survey
  • chronic disease
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  • patient participation
  • surveys and questionnaires

More in this TOC Section

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