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Research

Diagnostic delays for breathlessness in primary care: a qualitative study to investigate current care and inform future pathways

Gillian E Doe, Marie T Williams, Stacey Chantrell, Michael C Steiner, Natalie Armstrong, Ann Hutchinson and Rachael A Evans
British Journal of General Practice 2023; 73 (731): e468-e477. DOI: https://doi.org/10.3399/BJGP.2022.0475
Gillian E Doe
Department of Respiratory Sciences, University of Leicester, Leicester, UK.
MSc
Roles: Research programme manager
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  • ORCID record for Gillian E Doe
Marie T Williams
University of South Australia, Adelaide, Australia.
PhD
Roles: Professor in physiotherapy, allied health and human performance
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Stacey Chantrell
Respiratory Theme, National Institute for Health and Care Research (NIHR) Leicester Biomedical Research Centre, University Hospitals of Leicester NHS Trust, Leicester, UK.
BSc
Roles: Research associate
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Michael C Steiner
Department of Respiratory Sciences, University of Leicester; respiratory consultant physician, Respiratory Theme, NIHR Leicester Biomedical Research Centre, University Hospitals of Leicester NHS Trust, Leicester, UK.
PhD
Roles: Professor of respiratory medicine
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Natalie Armstrong
Department of Health Sciences, University of Leicester, Leicester, UK.
PhD
Roles: Professor of healthcare improvement research
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Ann Hutchinson
Wolfson Palliative Care Research Centre, Hull York Medical School, University of Hull, Hull, UK.
PhD
Roles: Research fellow
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Rachael A Evans
Department of Respiratory Sciences, University of Leicester; respiratory consultant physician, Respiratory Theme, NIHR Leicester Biomedical Research Centre, University Hospitals of Leicester, Leicester, UK.
PhD
Roles: Associate professor of respiratory sciences
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  • Accepting age-related chronic symptoms with patient-centered care
    Ryuichi Ohta
    Published on: 23 June 2023
  • Delays in diagnosing breathlessness
    John Sharvill
    Published on: 26 May 2023
  • Published on: (23 June 2023)
    Page navigation anchor for Accepting age-related chronic symptoms with patient-centered care
    Accepting age-related chronic symptoms with patient-centered care
    • Ryuichi Ohta, Family physician, Unnan City Hospital, Japan

    I have read, with great respect, the research titled “Diagnostic delays for breathlessness in primary care: a qualitative study to investigate current care and inform future pathways.”1 This research clarified the critical insights about the management of breathlessness for both physicians and patients. Breathlessness can be subjective, and the diagnosis can be challenging in chronic conditions. Subjective symptoms can be modified with patients’ previous experiences and socioeconomic status. This article shows that physicians try to be objective, so the conflict between physicians and patients can appear. The suggested approaches to breathlessness are the basis of family physicians and respect for patient-centered care for chronic breathlessness.

    One of the vital things to approach chronic symptoms such as subjective breathlessness is patient-centered care for accepting aging, especially among older patients. Some older people may not accept the aging and persist in inquiring about other etiologies of their symptoms not related to aging even though ruling out critical diseases.2 For accepting age-related symptoms, patient-centered care is essential and respect their perceptions about their symptoms. The continual dialogue among older patients and healthcare professionals can mitigate the patients’ difficulty in accepting aging, which enables them to live with their chronic symptoms, such as breathlessness.3...

    Show More

    I have read, with great respect, the research titled “Diagnostic delays for breathlessness in primary care: a qualitative study to investigate current care and inform future pathways.”1 This research clarified the critical insights about the management of breathlessness for both physicians and patients. Breathlessness can be subjective, and the diagnosis can be challenging in chronic conditions. Subjective symptoms can be modified with patients’ previous experiences and socioeconomic status. This article shows that physicians try to be objective, so the conflict between physicians and patients can appear. The suggested approaches to breathlessness are the basis of family physicians and respect for patient-centered care for chronic breathlessness.

    One of the vital things to approach chronic symptoms such as subjective breathlessness is patient-centered care for accepting aging, especially among older patients. Some older people may not accept the aging and persist in inquiring about other etiologies of their symptoms not related to aging even though ruling out critical diseases.2 For accepting age-related symptoms, patient-centered care is essential and respect their perceptions about their symptoms. The continual dialogue among older patients and healthcare professionals can mitigate the patients’ difficulty in accepting aging, which enables them to live with their chronic symptoms, such as breathlessness.3

    Not depending on organ-specific specialists regarding dealing with chronic symptoms related to aging, family physicians should focus on their practical communication skills with patient-centered approaches involving patients, families, and multiple healthcare professionals.

    References
    1. Doe GE, Williams MT, Chantrell S, et al. Diagnostic delays for breathlessness in primary care: a qualitative study to investigate current care and inform future pathways. Br J Gen Pract 2023;73(731):e468-e477. DOI: 10.3399/BJGP.2022.0475.
    2. Jaul E, Barron J. Age-Related Diseases and Clinical and Public Health Implications for the 85 Years Old and Over Population. Front Public Health 2017;5:335. (In eng). DOI: 10.3389/fpubh.2017.00335.
    3. Fleming MO, Haney TT. An imperative: patient-centered care for our aging population. Ochsner J 2013;13(2):190-3. (In eng).

    Show Less
    Competing Interests: None declared.
  • Published on: (26 May 2023)
    Page navigation anchor for Delays in diagnosing breathlessness
    Delays in diagnosing breathlessness
    • John Sharvill, GP, NHS

    I received my paper copy of the BJGP the same day as Dr Copperfield wrote in Pulse that guidelines and best practice get in the way of timely care. 

    I am aware of the wrong diagnosis is considered common but there are many obstacles that hinder care. Spirometry is a cause of obvious delay. Instead of a relatively quick ‘whilst you are here’ to give some idea of FEV1, FVC and PEF this now has to be done by someone with a gold standard ticket hence a delay. As more and more guidelines 'refer to a specialist nurse/or someone with a special interest in disease x', it is not surprising GPs are getting de skilled and people wait longer. As Dr Copperfield said the test advised for asthma (FeNO) don’t appear to exist in most areas 

    An example. At a junior parkrun the adult tail walker was surprisingly short of breath when the small children sprinted the last 100 metres. An informal non-medical chat with him revealed that he mentioned to his GP in Feb 2022 about his symptoms and was referred for lung function tests. He is still waiting. In my area many practices stopped spirometry (and ear syringing) during COVID and have not restarted. 

    Competing Interests: None declared.
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British Journal of General Practice: 73 (731)
British Journal of General Practice
Vol. 73, Issue 731
June 2023
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Diagnostic delays for breathlessness in primary care: a qualitative study to investigate current care and inform future pathways
Gillian E Doe, Marie T Williams, Stacey Chantrell, Michael C Steiner, Natalie Armstrong, Ann Hutchinson, Rachael A Evans
British Journal of General Practice 2023; 73 (731): e468-e477. DOI: 10.3399/BJGP.2022.0475

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Diagnostic delays for breathlessness in primary care: a qualitative study to investigate current care and inform future pathways
Gillian E Doe, Marie T Williams, Stacey Chantrell, Michael C Steiner, Natalie Armstrong, Ann Hutchinson, Rachael A Evans
British Journal of General Practice 2023; 73 (731): e468-e477. DOI: 10.3399/BJGP.2022.0475
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Keywords

  • breathlessness
  • diagnosis
  • primary care
  • qualitative research

More in this TOC Section

  • General practice as a place to receive help for domestic abuse during the COVID-19 pandemic: a qualitative interview study in England and Wales
  • Understanding primary care perspectives on supporting women’s health needs: a qualitative study
  • Trends in consultations and prescribing for rheumatic and musculoskeletal diseases: an electronic primary care records study
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