RT Journal Article
SR Electronic
T1 Electronic care coordination systems for people with advanced progressive illness: a mixed-methods evaluation in Scottish primary care
JF British Journal of General Practice
JO Br J Gen Pract
FD British Journal of General Practice
SP e20
OP e28
DO 10.3399/bjgp19X707117
VO 70
IS 690
A1 Anne M Finucane
A1 Deborah Davydaitis
A1 Zoe Horseman
A1 Emma Carduff
A1 Paul Baughan
A1 Julia Tapsfield
A1 Juliet A Spiller
A1 Richard Meade
A1 Brigid Lydon
A1 Ian M Thompson
A1 Kirsty J Boyd
A1 Scott A Murray
YR 2020
UL http://bjgp.org/content/70/690/e20.abstract
AB Background Electronic care coordination systems, known as the Key Information Summary (KIS) in Scotland, enable the creation of shared electronic records available across healthcare settings. A KIS provides clinicians with essential information to guide decision making for people likely to need emergency or out-of-hours care.Aim To estimate the proportion of people with an advanced progressive illness with a KIS by the time of death, to examine when planning information is documented, and suggest improvements for electronic care coordination systems.Design and setting This was a mixed-methods study involving 18 diverse general practices in Scotland.Method Retrospective review of medical records of patients who died in 2017, and semi-structured interviews with healthcare professionals were conducted.Results Data on 1304 decedents were collected. Of those with an advanced progressive illness (79%, n = 1034), 69% (n = 712) had a KIS. These were started a median of 45 weeks before death. People with cancer were most likely to have a KIS (80%, n = 288), and those with organ failure least likely (47%, n = 125). Overall, 68% (n = 482) of KIS included resuscitation status and 55% (n = 390) preferred place of care. People with a KIS were more likely to die in the community compared to those without one (61% versus 30%). Most KIS were considered useful/highly useful. Up-to-date free-text information within the KIS was valued highly.Conclusion In Scotland, most people with an advanced progressive illness have an electronic care coordination record by the time of death. This is an achievement. To improve further, better informal carer information, regular updating, and a focus on generating a KIS for people with organ failure is warranted.