Age |
Mean (SD) | 56.6 (13.0) | 58.3 (12.6) | 0.230 |
Median (minimum, maximum) | 57.0 (23.0, 83.0) | 60.0 (25.0, 85.0) | 0.242 |
|
Sex |
Male | 58 (35%) | 52 (32%) | 0.669 |
Female | 110 (65%) | 109 (68%) | |
|
Marital status |
Married/ De facto | 144 (85.4%) | 135 (83.7%) | 0.152 |
Separated/ Divorced | 13 (7.7%) | 17 (11%) | |
Single/ Widowed | 11 (6.5%) | 9 (5.6%) | |
|
Relationship to person being cared for |
Spouse/partner | 114 (68%) | 109 (68%) | 0.686 |
Parent | 16 (9.5%) | 12 (7.5%) | |
Adult child | 22 (13%) | 28 (17%) | |
Sibling | 4 (2.4%) | 2 (1.2%) | |
Other | 12 (7.2%) | 10 (9.0%) | |
|
Living arrangements of ill person |
With you | 141 (84%) | 135 (84%) | 0.891 |
By themselves | 14 (8.3%) | 10 (6.2%) | |
Other | 13 (7.8%) | 16 (9.9%) | |
|
Highest level of education |
Primary school | 9 (5.4%) | 7 (4.3%) | 0.843 |
Secondary School | 92 (55%) | 84 (52%) | |
Certificate or diploma | 43 (26%) | 48 (30%) | |
University degree | 24 (14%) | 22 (14%) | |
|
Private health insurance |
Medicare onlya | 111 (66%) | 85 (53%) | 0.030 |
Private health insurance | 57 (33.8%) | 76 (46.9%) | |
|
Employment previous |
Full time | 53 (32%) | 52 (32%) | 0.813 |
Part time | 33 (20%) | 28 (17%) | |
Self employed | 13 (7.7%) | 12 (7.5%) | |
Retired | 40 (24%) | 40 (25%) | |
Household duties | 17 (10%) | 14 (8.7%) | |
Other | 12 (7.2%) | 15 (9.3%) | |
|
Employment current |
Full time | 36 (21%) | 33 (20%) | 0.883 |
Part time | 21 (13%) | 20 (12%) | |
Self employed | 11 (6.5%) | 9 (5.6%) | |
Household duties | 21 (13%) | 16 (9.9%) | |
Retired | 51 (30%) | 50 (31%) | |
Other | 28 (16.8%) | 33 (21.5%) | |
|
Gross household income per week |
<$300b | 15 (9.6%) | 11 (7.5%) | 0.746 |
$300–499 | 34 (22%) | 26 (18%) | |
$500–799 | 54 (34%) | 50 (34%) | |
$800–1000 | 19 (12%) | 23 (16%) | |
>$1000 | 35 (22%) | 37 (25%) | |
|
Supportive Care Needs Survey - Partners and Caregivers (SCNS-P&C)c |
Health care service needs, mean (SD) | 2.2 (0.9) | 2.4 (0.9) | 0.027 |
Psychology and emotional needs, mean (SD) | 2.1 (0.8) | 2.3 (0.9) | 0.007 |
Work and social needs, mean (SD) | 1.9 (0.8) | 2.2 (0.8) | 0.006 |
Information needs, mean (SD) | 2.1 (0.8) | 2.4 (0.9) | 0.004 |
Total number of unmet needs, mean (SD) | 5.8 (7.8) | 8.4 (9.4) | 0.007 |
|
Hospital Anxiety and Depression Scale (HADS) |
HADS anxiety score, mean (SD) | 8.0 (4.7) | 9.3 (4.3) | 0.010 |
HADS depression score, mean (SD) | 5.3 (4.0) | 6.3 (4.2) | 0.021 |
|
Short Form 12 |
SF-12 Physical component score, mean (SD) | 47.6 (10.8) | 48.8 (11.1) | 0.323 |
SF-12 Mental component score, mean (SD) | 46.0 (10.9) | 42.2 (11.7) | 0.003 |
Anxious (HADSa >70) N (%) | 88 (52%) | 102 (63%) | 0.044 |
Depressed (HADSd >70) N (%) | 42 (25%) | 57 (35%) | 0.040 |
|
Australia — modified Karnofsky Performance Scale (AKPS) |
How well is patient functioning |
AKPS 80–100 | 55 (33%) | 55 (34%) | 0.960 |
AKPS 30–70 | 110 (65%) | 103 (64%) | |
AKPS 10–20 | 3 (1.8%) | 3 (1.9%) | |