Table 1.

Participant characteristics (n = 35)

Diagnosis (patient identification)Patients (relatives),a nFemales, nMales, nAge, yearsDuration of appraisal and help-seeking interval, monthsb,cDuration of diagnostic interval, monthsc,d
Median (range)Median (range)Median (range)
Non-Hodgkin lymphoma
  Diffuse large B-cell
  (P2, 4, 8, 9, 20, 21, 24, 27, 29, 31, 32, 35)
12 (7)5764 (48–81)1 (0.5–13)2.5 (1–14)
  Follicular
   (P1, 3, 6, 10, 12, 13, 18, 22, 26)
9 (2)4563 (39–84)1 (0.5–12)3 (1.5–15)
  Marginal zone
   (P5, 16, 25, 28, 30, 33)
6 (1)4262 (57–76)1 (0.5–10)12 (3–25)
  Mantle cell
   (P11, 15, 34)
3 (3)2171 (70–75)1 (1–6)2 (2–10)
Hodgkin lymphoma
(P7, 14, 17, 19, 23)
5 (2)2336 (23–56)0.5 (0.5–2)5 (3–24)
Total35 (15)171863 (23–84)1 (0.5–13)4 (1–24)
  • a All were spouses and/or partners of the interviewee with lymphoma.

  • b First symptom to first help seeking.

  • c Estimate based on information provided by patients in the routine Haematological Malignancy Research Network (HMRN) questionnaire about symptoms and help seeking.

  • d First help seeking to diagnosis. P = participant.