Box 2.

Circumstances leading to out-of-hours hospital admissions for patients receiving end-of-life care

Thematic areaThemesSubthemes
ParticipantsPatients
  • Patient needs or wishes

Caregivers
  • Carer inexperience of death

  • Carer preferences

  • Carer burnout

  • Carer uncertainty

  • Carer breakdown

Both
  • Patient or carer distress

  • Patient or carer anxiety

Structures and processesPolicy
  • Lack of advance care planning

  • Concerns about timely access to anticipatory medication

Organisation
  • Unavailability or limited capacity of alternative services

  • Lack of systems in place

  • Lack of availability or accessibility of patient information

  • Lack of flexibility (fixed structure)

  • Complexities of workforce management

  • Lack of continuity of care

  • Lack of time to assess and address needs

Provider
  • Lack of training

  • Poor communication

  • Inability to provide care

  • Unfamiliarity with the patient

  • Feeling of not performing their duties

  • Fear of professional repercussions

Clinical factorsAssessment or diagnosis
  • Clinical or diagnostic uncertainty

  • Complexity of the situation

Symptom management
  • Treatment of pain or other physical symptoms

  • Complication of treatment or failure of initial treatment

Precaution or follow-up
  • As a precaution

  • Abnormal laboratory results

  • Further investigation