Box 2.

Recommendations relating to clinic organisation (questions 1 to 6)

  1. Consider long COVID in patients with a clinical diagnosis of COVID-19 as per WHO criteria8 or test- positive history with new or fluctuating symptoms including but not limited to breathlessness, chest pain, palpitations, inappropriate tachycardia, wheeze, stridor, urticaria, abdominal pain, diarrhoea, arthralgia, neuralgia, dysphonia, fatigue including neurocognitive fatigue, cognitive impairment, prolonged pyrexia, and neuropathy occurring beyond 4 weeks of initial COVID-19 (strongly agree 19, 58%; agree 11, 33%; neither agree nor disagree = 0, 0%; disagree = 2, 6%; strongly disagree = 1, 3%).

  2. Multi-specialty long COVID clinics should be led by a doctor with cross-specialty knowledge and experience of managing this condition (strongly agree = 29, 88%; agree = 2, 6%; neither agree nor disagree = 1, 3%; disagree = 0, 0%; strongly disagree = 1, 3%).

  3. Consider individualised investigations, management, and rehabilitation planning via a multi-specialty long COVID assessment service as local services allow. Prioritise physician-led medical assessments and diagnostics initially, and consider allied health professionals including physiotherapy and occupational therapist input as adjuncts (strongly agree = 23, 70%; agree = 8, 24%; neither agree nor disagree = 1, 3%; disagree = 1, 3%; strongly disagree = 0, 0%).

  4. It is inappropriate for long COVID clinics to be led by mental health specialists, for example, IAPT [Improved Access to Psychological Therapy], clinical or health psychologist. They may be useful in supporting the multi-specialty team but do not have the expertise to investigate and manage potential organ damage (strongly agree = 27, 82%; agree = 5, 15%; neither agree nor disagree = 1, 3%; disagree = 0, 0%; strongly disagree = 0, 0%).

  5. All under-18-year-olds need access to similar services run by paediatric specialists with knowledge of how presentations and treatments differ for adults and with close liaison with school (strongly agree = 26, 79%; agree = 7, 21%; neither agree nor disagree = 0, 0%; disagree = 0, 0%; strongly disagree = 0, 0%).

  6. Patients with comorbid mental health difficulties should have equal access to medical care as a patient without mental health difficulties and should not be triaged away from services (strongly agree = 28, 85%; agree = 5, 15%; neither agree nor disagree = 0, 0%; disagree = 0, 0%; strongly disagree = 0, 0%).