Good-practice guideline | Description |
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1. Consider the communities that the researchneeds to involve | Researchers should work to ensure that there is proportionate representation of ethnic minority (and all under-served groups where possible) groups, and that the research team is provided with the skills and tools to be able to achieve this |
2. Undertake effective patient and public involvement (PPIE) in research | Researchers should recognise how important PPIE is to conducting good-quality health research and plan PPIE from the outset of the research, and have a strategy in place for how to achieve this |
3. Conduct effective recruitment in ethnic minority communities | There is a need for researchers to have sufficient knowledge of access and engagement strategies (and how they should be tailored to different population groups) to ensure effective recruitment of all populations who need to be involved |
4. Ensure cultural competence in the conduct of the research | All researchers who are engaging with patients should ensure that their teams have undergone cultural competency training so that they can engage respectfully and effectively with people of all cultures, ethnic backgrounds, religions, and other diversity factors |
5. Provide effective feedback to research participants | Findings of research should be communicated back to all communities involved (and not solely within the academic context), and be tailored to different population groups where required |
↵a These principles apply to all under-served populations. Adapted from Farooqi et al.17,18