General paperDeterminants of informal caregivers' satisfaction with services for dying cancer patients
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Evaluation of care for leukemia and lymphoma patients during their last hospitalization from the perspective of the bereaved family
2016, Leukemia ResearchCitation Excerpt :However, it is not easy to assess patients’ opinions of care, because most are too ill to complete questionnaires or to be interviewed [13]. For this reason, many evaluations of end-of-life care have used the bereaved family members [14–17]. In this study, we also chose to use bereaved family members as patient proxies.
Measuring experience with end-of-life care: A systematic literature review
2015, Journal of Pain and Symptom ManagementCitation Excerpt :The reported timing of administration of after-death studies varied substantially from three weeks to one year after death. This variation was likely influenced, in part, by the variation in care settings, the purpose of research for each of the studies, and the availability of after-death data (e.g., the Regional Study of the Dying used samples of death certificates from 20 health districts in the United Kingdom14–16). Some research has shown that timing of after-death surveys may influence the reliability of caregivers' perceptions of their loved ones' pain severity and other physical symptoms at four and nine months.17
Factors that affect quality of dying and death in terminal cancer patients on inpatient palliative care units: Perspectives of bereaved family caregivers
2013, Journal of Pain and Symptom ManagementCitation Excerpt :Direct surveys of these patients are difficult and may be biased because many patients are physically or mentally incapable of participation.1 Surveys of family members often are performed instead.2–6 Previous studies that examined the factors associated with the quality of care in hospice7,8 and satisfaction with hospice9 found that longer hospice stays receive better ratings.