Original InvestigationDevelopment and Results of a Kidney Disease Knowledge Survey Given to Patients With CKD
Section snippets
Survey Development
We developed a survey to assess kidney disease knowledge in a stepwise fashion. A priori, we developed survey questions to represent knowledge about topics important to kidney disease management. Approximately 100 questions were generated first to maximize content relevant to kidney knowledge. These content areas included functions of the kidney, treatment options for kidney failure, signs and symptoms of disease progression, medications of potential benefit or harm to the kidney, blood
Participant Characteristics
Four hundred six consecutive consenting patients were recruited from a nephrology specialty clinic (67% response rate). The most common reason for not participating was insufficient time. We do not have information about nonparticipants. The survey took an average of 25 minutes to complete. Five participants withdrew because of illness (n = 2), not wanting to finish (n = 1), and time (n = 2), leaving 401 participants.
Overall, participants had a median age of 58 (25th-75th percentile, 46-68)
Discussion
Using a systematic method of survey design, development, administration, and analysis, we have created an instrument that is valid and reliable in measuring disease-specific knowledge in patients with CKD. The reliability calculated for our knowledge survey is similar to other knowledge scales in similar populations (hemodialysis)14, 19 and patients with other chronic diseases.44 KiKS performed as expected with our a priori model and showed bivariate associations similar to those found in
Acknowledgements
Support: This work was supported in part by T32 DK007569 and a Clinical Scientist in Nephrology Fellowship Grant from the American Kidney Fund (to Dr Wright). Additional support was provided by the National Institute of Diabetes and Digestive and Kidney Diseases by awards K23DK080952 and K23DK080952-02S1 (Dr Cavanaugh), K24DK77875 and P60DK020593 (Dr Elasy), and K24DK062849 (Dr Ikizler). The funding agencies did not have a role in the design, conduct, or reporting of the study.
Financial
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Originally published online December 20, 2010.