Family carers' experiences of out-of-hours community palliative care: a qualitative study

Int J Palliat Nurs. 2004 Feb;10(2):76-83. doi: 10.12968/ijpn.2004.10.2.12457.

Abstract

Carers' feelings of uncertainty and anxiety can be particularly acute out-of-hours, when they may not have access to familiar sources of professional help and advice. The present study used qualitative semi-structured interviews to explore carers' experiences of out-of-hours care and support services. Fifteen bereaved carers in the Calderdale and Kirklees area were interviewed, and the interview transcripts analysed thematically. In general, carers felt well supported out-of-hours, especially by the nursing services. They appreciated opportunities to develop some degree of personal relationship with those they saw out-of-hours. However, in some cases problems were apparent. These were associated with poor provision of information, inadequate communication with carers, difficulties in accessing night-sitter services, or the inflexibility of services. The findings underline the importance of primary care practitioners taking an anticipatory approach to community palliative care.

Publication types

  • Evaluation Study

MeSH terms

  • After-Hours Care / organization & administration*
  • Aged
  • Aged, 80 and over
  • Attitude to Health*
  • Caregivers / psychology*
  • Community Health Services / organization & administration*
  • Crisis Intervention / organization & administration
  • Family / psychology*
  • Female
  • Health Services Accessibility / organization & administration
  • Humans
  • Male
  • Middle Aged
  • Needs Assessment
  • Nursing Methodology Research
  • Palliative Care / organization & administration*
  • Program Evaluation
  • Qualitative Research
  • Quality of Health Care
  • Social Support
  • Surveys and Questionnaires
  • Time Factors
  • United Kingdom